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Well, I am officially out of titles to describe our stay here and there and everywhere. We are, wait for it, still at ACH. I know you can hardly believe it, but believe it. We finally got demoted today to the tiny room. However, they have upgraded since we were there two weeks ago. They now have the bigger tv's and x-box and internet access in them as well. They just have the tiny pull out chairs. I know you will be surprised to know this as well. We did not do the sweat chloride today either. So, it looks like we will be here until Monday. The people who do them said if she were on any kind of oxygen (1/2 liter at that time), it could be inaccurate. They said it is not exactly a painful test, but uncomfortable. So, I would be selfish if I demanded and threw a hissy fit to have it done today. So here we are.....still.......
Shortly before we moved rooms today, Joan came to see us. She brought a goody basket. It had a good book in it and lots of other stuff. But it cracked me up, because I knew she really is a mom when she put me a few fiber one bars in there. Just like a mom, she knew I had been eating crap up here. Thanks Joan!
We also took Lib off her oxygen and she seems to be doing fine. Of course, they waited until the sweat chloride test doer people were gone, I'm sure. But she is doing fine, nonetheless. Sorry, do I sound a little bitter and moreover IMPATIENT! We are just needing a little normal in our lives these days. I'm sure normal will be here soon enough, and then I'll be bitching about that too.
I will continue to keep everyone updated. Thank you all so much for all your prayers and words of encouragement, because without them, I am sure I wouldn't be doing as well as I am. I know all of the prayers have helped Libby stay strong and give them all HE__!!

P.S. Thank you very much to the person who sent the gift with Aprill, I don't know who you are ( but I have a good guess (karen))but I do appreciate it a lot